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Ellie’s Story

I donated one of my kidneys in January 2024.

One day I got talking to one of my clients at the skin clinic where I work, who told me that her stepdaughters both suffered from a hereditary kidney disease and needed dialysis to live. I had trained as a nurse and spent some time on a dialysis ward, so I understood the reality of what it meant to live with kidney disease and rely on a dialysis machine to survive. I had known about living kidney donation, but had never really considered doing it myself until hearing her story. It planted that seed in my head.

I didn’t say anything to her in the moment, but gave it a lot more thought after she left. I can be quite an impulsive person, so for something as important as this I wanted to give myself time to consider everything. I’m lucky enough to have had no real health scares. If I was able to live a healthy life with just one kidney and my spare could go to someone in need, then why not?

I spoke to my dad about it too, who was really supportive. My husband was definitely more worried for my own safety, but after we talked it through he understood why I wanted to do it.

About a week later I emailed her saying I’d given it more thought, and I wanted to put myself forward to donate to whichever stepdaughter was the better match for my kidney.

Initially they thought I was bonkers! We arranged to go for a coffee to chat everything through in more detail. She got me the contact details for the Brighton medical team, so I contacted them and started the process.

Living kidney donor taking a selfie alongside her kidney recipient. Both are smiling widely for the camera. Ellie is wearing a pink jumper.

After that, I just went along with the flow of it all and did as I was told. I think my medical background helped me to understand the reasons why they needed to check everything, so I never really had any questions. All in all the tests took around 12 months, from me first contacting the team to getting to the donation stage.

After a few months, I was told that I was a near perfect match for Tess, one of the daughters! Her father gave me her number and we met up. She was really lovely, but it was also clear that they still didn’t believe anything would actually happen from it. She told me that she been on the transplant list for 3 years before I offered to donate. It just made me want to donate even more, as long as the tests showed that I was able to.

The operation itself all went according to plan – there’s so much build up but the day itself felt like it flew by! Unfortunately after the operation I had some abnormal swelling from the anaesthetic and a damaged lymph node, so I had to be readmitted to check that everything had recovered properly.

Living kidney donor Ellie lying in a hospital bed, with a blanket pulled up to her neck. She is giving a big smile and thumbs up for the camera

The team at Guys were great and thoroughly checked everything, it turned out I had what is known as a Chyle leak. The first line of treatment for a chyle leak is a special diet that include 0% fat in able for my body to heal the leak by itself, not quite the indulgent diet of treats and Netflix I had planned for recovery but I sure made up for it as within a few weeks the leak had healed and no long term health issues. Even if I knew this hiccup would have happened I definitely still would have gone ahead with the surgery even if I knew this was going to happen afterwards.

Other than that, the recovery wasn’t too bad. I was determined to rest up as best I could so that I could be up and about again as quickly as possible.

I’d say it took around 4 weeks before I really felt back to my usual self, but since then I haven’t felt any different at all. I still get a check up once a year to make sure everything’s fine, which is a great safety net just to know is there, but I’ve never had any issues.

Living kidney donor Ellie alongside her kidney recipient Tess. In front of them is a beautifully decorated pink cake, topped with a marzipan kidney.

Since she received my spare kidney, Tess has been doing really well. We keep in touch all the time and recently met up for the 1 year anniversary. She has two young boys – she told me that she used to feel vacant with them and always exhausted because of her damaged kidneys, but now she’s able to enjoy life to the fullest with her family. Going for walks, being able to play without needing to rest afterwards, going swimming, having more time for them now she’s not needing dialysis. Not only has my gift given her so much life but also the effect for the whole family being able to enjoy making memories together and living life to the fullest!

I can’t stress enough how little my day-to-day life has changed since my operation. I was in a bit of pain and uncomfortable for a few weeks, yes, but what Tess has gained outweighs that massively. I’m honoured to have gained a relationship with Tess from this, but that’s just a bonus to knowing I changed someone’s life with something my body wasn’t using. It’s been worth it.

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