Julie donated to her son and knows first hand that donating an organ doesn’t just save a person. It saves a family.
My son, Will, was playing golf the week before he found out he had kidney disease. He felt nothing out of the ordinary outside of feeling under the weather. We thought it was just a cold at first – this was March 2021, near the end of covid. He just looked very tired and full of a cold.
He continued playing golf through the illness, and his dad noticed that he didn’t seem to see the ball very well. We persuaded him to go for an eye test just to check everything. What did he have to lose? The optician at Specsavers couldn’t see anything wrong with his eyes, but arranged for him to go into hospital the next day just to be checked over to make sure. In retrospect we couldn’t thank her enough – if not for her, Will wouldn’t be here today.
Will went into the hospital the next day. He even phoned his auntie on the way in and said he only expected to be an hour, so would see them when he was out.
The hospital optician couldn’t see any issue with his eyes. They took his blood pressure as a precaution and found out that it was critically high. This was the point when everything really started.
The family were quickly called into the hospital and told that they believed Will had kidney disease or kidney cancer. He wouldn’t be able to go home until they had spoken to experts in Preston.
We all tried to stay quite relaxed. I went home to get his charger as he would be staying overnight, and by the time I was back he was hooked up to loads of wires. Later that evening he called us to say that a helicopter was coming to pick him up and bring him to Preston hospital. By the time I had made it to the hospital, he had already gone.
Will ended up being in hospital for three months. We weren’t allowed to see him much at all because of covid, but he was allowed to come home a few times and his wonderful consultant always kept us up to date. At one point after leaving hospital he and his dad got covid, which really knocked him for six. He even had to go back into hospital for a time.
We’re a very close family, so it really hit us very hard. His dad had a heart attack from the stress of it. Will is one of four brothers, and it affected his siblings very badly. We used to all drive down to Preston and they let us in one by one. That was a huge help, as it gave everyone the chance to see that he wasn’t at death’s door.
It was another few months before he was finally diagnosed with kidney disease. That was a big moment. We had a name for what was going on. We didn’t need to worry about the unknown – though the circumstances were still very difficult. At this point his kidney function was down to around 4%. On the day of his birthday, he was put on dialysis to keep him alive.
Some people may think that dialysis is a cure for kidney disease, so why the need for a transplant? But it’s not a cure at all. It’s a huge strain on the heart, like running a marathon every time you use it. Your life revolves around connecting up to this machine, for some people every evening.
As soon as Will was put on the transplant list, donor testing began. Both my husband and I started testing to see if we were a match. We were initially told that we could both be a donor, but after some more tests and a health scare from Bill we agreed that it had to be me.
I didn’t realise it would take so long from starting the tests to the operation itself. Will needed a kidney ASAP, but these things take time to make sure everyone is as safe as can be. For example, I was told that I needed more tests on my liver because they wanted to double check my health and that donating wouldn’t have negative consequences for me.
After all my testing was done, we found out that Will wasn’t fit enough to immediately have the transplant, as his haemoglobin levels were too low. We kept on waiting for the good news. Then, when we finally got the phone call that he was fit enough to have the operation, it was a moment I’ll never forget.
The operation itself went off without a hitch. Will and I went down to theatre – I went in the morning, with him going in around lunchtime – and by the afternoon it was all done. At 4pm, Will rang his dad to say it felt as though a cloud had been lifted from his shoulders. He had very little pain, and felt incredible! We got told that night that my kidney started producing urine for him right away. He went from almost no kidney function to 30%. Within 2 weeks, he was back driving again. He had his independence back.
Honestly I don’t remember too much about the time straight after the operation. I basically slept through the whole weekend! As soon as I was told that Will was well, I was able to rest.
I definitely needed a bit of time to recover. I work in a school and luckily my recovery happened over the holidays. I couldn’t walk very well for around 6 weeks. There wasn’t any real pain after the first few days, but my body needed to get back to normal. There was a space where my kidney used to be, so all my organs needed to get comfortable!
I honestly thought that donating a kidney would be a lot worse than it ended up being. I had four kids to be looking after! How was I going to do it?! But honestly, my recovery was so much easier than I worried it’d be.
At any time, there are thousands of people waiting for a kidney. Thousands of lives at risk. And people like me are lucky enough to be born with two kidneys, but only need one. I already share my car with my husband, my food with my kids – why not share my kidney too? I don’t need it, but someone else does. Why not?
I also know first hand that donating an organ doesn’t just save a person. It saves a family. If we’d lost him, I don’t know how we would have coped. We’ve got our family intact, but there are still so many families out there still waiting.
"It has now been over a year since my donation. I have zero pain or discomfort, and I am entirely back to normal with nothing but a scar to remind me of my experience."
ReadRachel already knew more than she wanted to about the process of kidney donation before she gave her spare kidney to someone she didn’t know.
ReadHenry donated a kidney to his sister Helen, and has seen first-hand the difference a donation can make for someone with kidney disease.
Read“It has made absolutely no difference to my day-to-day life. My mum, however, has a life like never before.”
ReadNaomi knew she wanted to donate a kidney after learning about kidney disease and reality of life on dialysis.
ReadEmma donated her kidney to a stranger eight years ago after first seeing a story about non-directed donation on TV four years previously.
ReadJoyce thought that she was too old to donate a kidney, before learning there was no upper age limit for donating.
ReadMandy donated one of her kidneys to her younger cousin Lou, who was diagnosed with kidney problems when she was two years old.
Read"I don’t consider myself to be a hero or brave. I just did what I was brought up to do – to help others."
ReadJulie worked hard to stay fit and healthy while she was preparing to donate a kidney to her nephew.
Read"At the beginning it seemed like a difficult decision to make, but since the operation I don’t have any regrets."
ReadTessa believes that donating a kidney to a stranger is one of the best decisions she's ever made.
ReadLynn was 75 when she donated a kidney altruistically. "I knew I wanted to do it if I was capable of doing so."
Read“You don’t need to be a superhero, you don’t need to be a mega star of any sort. It’s something that normal people just like me can do."
ReadLaura knew she would donate a kidney to her sister if she needed it. When the time came, she found the process absolutely worth it.
ReadMatt's dream of joining the police was shattered by an unexpected diagnosis of kidney disease, but his mother's kidney donation allowed him to thrive and pursue new dreams.
Read"I've learnt a lot about myself and my own health – I would do it again in a heartbeat (if I had another kidney to spare!)"
Read"I believe that if you are in a position to help someone else less fortunate than yourself, then you should do so."
ReadEvery kidneyversary deserves a celebration, but in 2024 Elaine marked a particularly poignant milestone – 10 years since she donated a kidney to her eldest daughter.
Read"I feel immeasurably better in myself knowing I have been able to give my brother the gift of a healthy life."
ReadDennis is keen to show people that you can still live your life as normal and achieve great things after donating a kidney.
ReadWhen Ali heard that a former colleague was waiting for a kidney transplant, he knew within minutes that he would offer one of his.
Read"My mum needed a kidney, and I didn’t need both of mine. When I heard that, I didn't have any hesitation."
ReadKathryn faced life-changing kidney failure after being diagnosed with the rare disease, IgA vasculitis.
ReadMarianne has seen first hand the benefits that kidney donation can bring to a family, and feels blessed that she was able to donate a kidney to her brother.
ReadBen felt drained by kidney disease for over 12 years before his cousin gave him a second chance at life by donating his kidney.
ReadAnne donated into the UK Living Kidney Sharing Scheme so that her brother could receive a kidney transplant.
Read"Within both the Jain and Hindu faiths benevolence to others is supposed to be a key principle. What could be a greater act of benevolence than transforming someone’s life by giving them part of yourself?"
Read"If I had more Kidneys to give, I'd be donating to anyone who needed one."
ReadTrainee teacher Mark is grateful for the life-saving kidney transplant from his brother that put him back on track for life and his career.
ReadSheldon & Hayley watched their daughter Daisy-May go from a shock diagnosis of kidney failure to dialysis, then transplant, in an emotional rollercoaster lasting 16 months.
ReadMy donor gave me a life to live for. I have done things I had never considered doing whilst on dialysis.
Read"If I had another kidney to spare, I would donate in a heartbeat. It was life changing for my husband, and for me as a person."
ReadDavid is just an average Joe. A motorcycling, 54-year-old father and grandfather. And 6 years ago, he donated one of his kidneys to someone who needed it more than he did.
Read40 years ago, Kathleen donated one of her kidneys to Cheryl, who was just five years old at the time.
Read"Giving a small part of me that I didn’t need to someone else would make little difference in my life, but a huge difference in theirs – it was an easy decision for me to make."
ReadLiz's family struggled at first with her determination to donate her kidney to someone unrelated to her.
Read"I donated a kidney to my dad 10 years ago, aged 25. To me, it was a no brainer."
ReadSarah had seen the life-changing difference donating a kidney could have, and immediately knew it was something she wanted to do.
ReadI would not feel as comfortable in my own skin as I do now if I had not donated my kidney.
ReadPete’s kidney gave me my life back and gave my son Edward a mum with energy and vitality.
ReadWhether you’ve already decided to donate a kidney, or you are interested in finding out more about the process and what it involves, we’re here to answer any questions you might have.
